kashacollectiveHQ

LFS / BRAIN CANCER / SCIENCE & REAL LIFE

Beyond the
Diagnosis.

A place for the questions that keep coming, the science I want to understand, and practical things that could make it easier to keep track of it all.

Room for the person. Room for the questions.

A DEDICATED SPACE / TAKING SHAPE

Let’s explore
what we want to understand.

This part of the Collective will focus specifically on LFS and brain cancer: exploring science, gathering questions, and creating resources around this topic. I’ll add researched pieces with links to their sources as this space grows.

01 / EXPLORING THE SCIENCE

Big questions.
Closer reading.

A space for exploring research and the questions it raises, with clear sources and room to explain what is known, what is uncertain, and what I’m still learning.

02 / TOPIC-SPECIFIC TEMPLATES

Less scattered.
More in one place.

Templates planned specifically for this topic: appointment notes, questions to bring to your care team, and a place to organize information you want to return to. These resources are still being developed.

03 / RESEARCH NOTES

Save the source.
Keep the question.

Ideas for research logs and reading templates that keep a paper’s link, publication date, key points, and follow-up questions together.

04 / WHAT WOULD HELP YOU?

A resource
with your needs in mind.

Have a question you’d like explored or a specific template request related to LFS or brain cancer? Tell me what you’re trying to understand or organize.

Share a question or request ↗

Step inside the science.
Find a way to understand.

I’m writing books and creating immersive experiences that bring the science off the page—giving kids and adults ways to explore a diagnosis through stories, imagery, and discovery.

01 / EXPLORE

See the science.
Follow your questions.

LFS and brain cancer explored through stories, visuals, and interactive activities that break complex information into approachable pieces.

Understand more. Feel more connected. Make room for hope.
02 / EXPERIENCE

Step into the learning.
Make the connections.

I’m creating immersive, visual learning experiences—and I’m open to developing them for other cancers and hereditary diagnoses, too.

Stories + imagery + discovery.
03 / UNDERSTAND YOUR OPTIONS

Explore what’s offered.
Know what to ask.

I’m developing visual explanations, plain-language guides, and interactive ways to explore treatments and clinical trials.

The goal: understand the options and discuss benefits, risks, uncertainties, and trial eligibility with your care team—so you can take an informed part in decisions about your care.

More understanding. More room for your questions.
DIAGNOSIS / A NEW WAY TO UNDERSTAND

Step inside the science.
See beyond the diagnosis.

I’m creating books and immersive learning experiences using augmented reality (AR) and virtual reality (VR) to help kids and adults understand diagnoses in a whole new way—bringing complex science to life through visual exploration, stories, and discovery, with room for connection and hope.

EXPLORE / DISCOVER

More than words on a page.

Interactive activities and immersive experiences that invite you to explore the science, make connections, and ask your next question.

KEEP / USE

A place for the pieces.

Visual guides and topic-specific templates to gather what you’re learning and the questions you want to bring to your care team.

Helping little humans make sense
of complex diagnoses.

Children facing a diagnosis need explanations suited to their age, with space for feelings as well as facts. Siblings have their own questions, too. I’m building those different perspectives into the experiences, so each child has a place in the conversation.

Meet Leo & the Little World Within ↗

For adults, the focus is connecting the science with the decisions and everyday realities they’re navigating. Across these resources, I’m working toward information grounded in reliable sources and reviewed by qualified professionals.

Share an idea or a learning-resource request ↗

SCIENCE / ORGANIZATION / CONNECTION

One place to return to.
More to come.

This is the beginning of the space. Articles and downloadable templates will be added as they’re ready. The resources will help organize information and conversations with your care team.